“Take him home, love him, give him a good life, he’s going to die”
The words delivered to Harrison’s parents when diagnosed in January 2011 with Duchenne Muscular Dystrophy.
Harrison was diagnosed in January 2011, a day that we will never forget - one blood test changed everything. Numb, we had to start down a path we never dreamt we would have to follow. We had to take those first steps that no one is ever taught. Our immediate thoughts, like all parents in this position, were to secure the best possible care for Harrison, and we were lucky to be close enough to the fabulous teams at Great Ormond Street Hospital.
Having worked with some of the best organisations in the world fighting Duchenne, it is clear that for the very first time, there may actually be a chance of a major breakthrough. Over the last 11 years, many funded by HF, scientists have made giant strides in gene therapy and molecular medicine, and a number of pharmaceutical companies have successfully brought therapies for some patients with Duchenne to market.
The vast majority of organisations focus on research, hope and saving lives through that research and improving standards of care for patients. Harrison’s Fund is known globally for striking, sometimes shocking campaigns, small and fleet of foot, challenging the status quo and disrupting the charitable industry.
Once again Harrison's Fund has stepped into a new space. The first Mental Health Charity dedicated to Duchenne.
To bring hope where there seems little, to help navigate this sometimes brutal journey from diagnosis to end of life, to help parents help their children, and to help siblings understand each other. To Rise together. #WeRiseTogether